June 24, 2024 8am - 4pm
September 15, 2023 8am-3pm
This year’s roundtable (in its 14th year) will focus on metrics + strategies for advancing bioethics, patient-centricity + health equity across the bio-pharmaceutical sector and amplifying + connecting participants’ work in these areas. Discussions may inform agenda-setting + metrics development for the Good Pharma Scorecard. Sessions will begin w/ opening remarks + transition to open discussion.
July 17, 2023
This year’s Trialscope event featured keynote speakers Jennifer Miller, PhD, founding president of Bioethics International and director of the Good Pharma Scorecard; and David Evans, president and CEO of the Clinical Data Interchange Standards Consortium (CDISC). Topics included DEI data sharing.
This was a gathering of industry leaders, regulatory experts, and technology enthusiasts focused on cutting-edge insights to shape the future of clinical trial disclosure.
October 19, 2022 — October 20, 2022
The National Health Council hosts its 2022 Science of Patient Engagement Symposium, From Research to Action: Health Equity for All. Over the past ears, the COVID-19 pandemic has upended the world and magnified health inequities among historically underrepresented racial/ethnic groups. The science of understanding the patient has never been more important. Health equity research, where diverse patients are at the core of scientific inquiry, is imperative to tackling inequities. BEI’s Founder, Jennifer E. Miller, PHD, will Keynote on Trust in Medical Research.
June 9, 2022 9am-4:15pm
This year’s bioethics roundtable, our 12th!, is hosted by Deloitte and will focus on equity and social responsibility in the bio-pharmaceutical sector and debut our new Good Pharma Scorecard (GPS) rankings on diversity and fair inclusion in research.
When: June 9, 2022 – 9am-4:15pm ET
Where: Deloitte’s NYC Offices
September 21, 2020 1:00PM-2:15PM EDT
ISPOR and the Innovation and Value Initiative (IVI) are collaborating—with help from an expert advisory committee—to define a series of dialogues that highlight key challenges confronting HEOR methodologists, patients, clinicians, and policy-makers during the COVID-19 pandemic. The webinar series will explore multiple viewpoints and focus on potential pathways for solutions in international and U.S.-focused health technology assessment and value assessment (VA/HTA).
June 23, 2019 — June 27, 2019
Panelists will explore the pros and cons of the pathway from the patient perspective and learn about how regulators and sponsors may help facilitate the development of critically needed treatments. This discussion will introduce a streamlined approach to early-stage development of therapies to address severely debilitating or life-threatening diseases and consider the potential value of a global regulatory approach.
Location: San Diego, CA
June 5, 2019 — June 7, 2019
Dr. Jennifer E. Miller answers “Whose Data Is It” question.
This 75-minute session will look at the ethical considerations, legal aspects, coaching perspectives and athletic viewpoints related to ownership of sports biometric data. This session will be moderated by Jeremy Abbate from Scientific American.
Location: Columbus, Ohio
September 16, 2019 — May 16, 2019
In June 2019, Cambridge University Press published Transparency in Health and Health Care in the United States, a volume, edited by Holly Fernandez Lynch, I. Glenn Cohen, Carmel Shachar, and Barbara J. Evans, with a chapter on clinical trial transparency and data sharing by Jennifer Miller (Founder of Bioethics International and an Assistant Professor at Yale) stemming from Harvard’s Petrie-Flom Center’s 2017 conference, on this health policy buzzword, recognizing its true limitations, so that transparency can be utilized as a solution to pressing health policy issues. Jennifer E. Miller will speak on a panel with Glenn Cohen and Holly Fernandez Lynch
May 2, 2019 8:30am-2:30pm
In partnership with EY and Scientific American, Bioethics International will hosts its 10th annual Forum on what it means to be a trustworthy, patient-centered & ethical pharma and healthcare innovation company.
Location: New York, NY
April 24, 2019
Dr. Jennifer E Miller speaks to BiOethics, the Law, and Data-sharing:
AI in Radiology at an event co-sponsored by NYU Langone Medical Center and Stanford University.
Artificial intelligence is a paradigm-shifting force across many fields including medical imaging. Radiology is one of the most data-rich medical subspecialties and leading academic and industry groups are already working to leverage this powerful tool to move our field forward. Research and implementation of AI in Radiology move us into unchartered territories, raising new questions with regard to best practices for data handling.
Dr. Jennifer E. Miller will discuss AI in the framework of ethical principles and privacy considerations.
Location: New York, NY
March 28, 2019 3:20-3:50 p.m.
This panel will bridge practical, legal and regulatory perspectives to solving privacy and ethics challenges related to broader integration of data sources, recruitment and consent, data ownership and social responsibility.
Moderator: Jodi Daniel, Partner – Crowell & Moring
Location: Washington, D.C.
March 8, 2019 5:00-6:00 p.m.
In the future, your medical prognosis may be predicted by data from fitness monitors, genetic testing kits, insurance databases, web searches, or even your cell phone’s GPS. Want to participate in a clinical trial? No need to visit the doctor’s office, just click “I agree,” and you’re enrolled! Taking healthcare digital is exciting — it has the potential to expand beyond the academic medical center and the traditional clinical trial. It can also democratize research by making studies more accessible to underserved and remote communities, making data more diverse and inclusive. But as we freely share our information, and as tech companies edge into the healthcare sphere, what protections are needed for ourselves, and our data?
Jennifer Miller, Yale University School of Medicine
Brooke Grindlinger, The New York Academy of Sciences
Regina James, 2M Research
Jessica Mega, Verily Life Sciences
February 15, 2019 2:10 - 2:55 p.m.
CBMRT hosts an annual summit series, the Biomedical Transparency Summits, in the US and EU. These summits represent a unique opportunity for stakeholders in the research ecosytem to connect, collaborate and update on major aspects of research transparency.
Dr. Jennifer E. Miller speaks about Data Sharing Principles and participates on a Data Sharing Panel, focused on Optimizing Utility
Location: Bethesda, MD
February 15, 2019 1:20-1:50 p.m.
CBMRT hosts an annual summit series, the Biomedical Transparency Summits, in the US and EU. These summits represent a unique opportunity for stakeholders in the research ecosytem to connect, collaborate and update on major aspects of research transparency.
Dr. Joseph Ross, Principal Investigator of the Good Pharma Scorecard, speaks about Sharing Data Through the YODA Project: Early Experiences and Lessons Learned and participates on a Data Sharing Panel, focused on Optimizing Utility
Location: Bethesda, MD
January 10, 2019 12:00-1:00 p.m.
“Ethics and Trustworthiness in the Pharmaceutical Industry and the Role of the Good Pharma Scorecard”
Dr. Miller will focus her talk on bioethics concerns about the pharmaceutical industry. Specifically, she will discuss clinical trial transparency for new drugs and provide an overview of the role of her Good Pharma Scorecard in addressing key bioethics concerns about drug companies.
Location: New Haven, CT
November 11, 2018 — November 12, 2018
The World Economic Forum is made up of 38 councils, each with 20 experts from academia, government, NGOs and industry. The Future’s council is just one of the 38 councils. The two group chairs from each council attend the Davos meeting annually.
October 24, 2018 — October 25, 2018
The mission of the New York Academy of Sciences is to drive innovative solutions to society’s challenges by advancing scientific research, education and policy. Dr. Jennifer E. Miller, Founder of Bioethics International and Assistant Professor at Yale School of Medicine, will be a keynote speaker, presenting on the ethics of big data in healthcare.
October 23, 2018 — October 24, 2018
The Milken Institute Future of Health Summit convenes thought leaders and decision makers to confront some of the world’s most significant health challenges.
Dr. Jennifer E. Miller, Founder of Bioethics International and Assistant Professor at Yale School of Medicine, will speak on the ethics and patient-centricity of healthcare innovation and the pharmaceutical sector.
October 2, 2018 — October 3, 2018
Measuring the impact of patient engagement helps ensure meaningful exchange and outcomes. This session presents a frank and forward looking discussion about the constraints around utilizing patient engagement metrics and new initiatives to advance the field.
Jennifer Miller, PhD, Assistant Professor, Yale School of Medicine
Suzanne Schrandt, PhD, Director, Patient Engagement, Arthritis Foundation
Theresa Mullin, PhD, Associate Director, Strategic Initiatives, CDER FDA
September 20, 2018 2:00-3:30pm
Public Accountability Around Disclosure
Merete Jørgensen, Senior Trial Disclosure Director, Clinical Reporting Anchor & Disclosure, Novo Nordisk, Denmark
Fiona Godlee, Editor in Chief, British Medical Journal (BMJ), United Kingdom
Jennifer Miller, Founder, Bioethics International and Good Pharma Scorecard, Assistant Professor, Yale University School of Medicine, United States of America
Lise Baltzer, Director for Global Publications, Novo Nordisk, Denmark
July 17, 2018 — July 18, 2018
These sessions will build on the strategies and tools discussed in the December 2017 Next Wave Forum – more details to come.
Location: Cambridge, MA
July 18, 2018 10:45-11:30am
This panel will discuss the impact of evolving technologies on cybersecurity as well as issues around privacy, quantum computing & encryption, big data, machine learning and AI.
Jonathan Conrad, Chairman, CEO & Founder, AdmieMobile
Shahryar Shaghagi, National Leader of Cybersecurity, CohnReznick
Jennifer Miller, Assistant Professor, Yale School of Medicine; Founder, Bioethics International
Mark Jackson, Scientific Lead, Cambridge Quantum Computing
June 27, 2018 9:00-10:00am
Blockchain technology offers many things. But if all you know about blockchain is bitcoin, you might be surprised to hear it may offer pharma an opportunity for more trustworthiness and transparency. In this free webinar we’ll be going beyond privacy, beyond honesty, beyond trust. We’ll explore how new technology and contract innovation offers a route for each and every human being to take control of their own data as their own property. And how pharma companies might welcome this development with open arms.
June 5, 2018 — June 6, 2018
DECONSTRUCTING CLINICAL TRIALS: the core of drug development and company valuations
Keywords: investment risks, opaque clinical trials.
Speakers:
Jennifer E. Miller, Founder, Bioethics International; Yale
Bowen Gu, Investor Engagement Researcher, Access to Medicine Foundation
Helena Fiestas, BNP Paribas Asset Management
May 24, 2018 2:00-3:00pm
This webinar will cover access to innovative new therapies through expanded access programs with guest speakers Jennifer Miller, PhD, Assistant Professor at Yale University School of Medicine and Alison Bateman-House, PhD, MPH, Assistant Professor at NYU School of Medicine. The webinar will look in detail at the process involved in obtaining an investigational therapy before it gains final FDA approval. Open to anyone looking to learn more about expanded access programs. Register here:http://bit.ly/2I8UvK8
May 4, 2018 8:30am-2:30pm
In partnership with EY and Scientific American, Bioethics International is hosting a Forum on what it means to be a purpose driven, patient-centered and ethical pharma and health-innovation company.
Location: New York, NY
April 17, 2018 — April 19, 2018
Panelists:
Karla Childers, J&J
Deborah Collyar, PAIR
Joao Francisco Ferreira, EMA
Andrew Cowrie-Smith, EFPIA
Jennifer E. Miller, PhD, NYU
Basel, Switzerland
March 19, 2018
Dr. Jennifer Miller speaks at Johns Hopkins Carey Business School
Monday, March 19th
Location
Baltimore, MD
March 15, 2018 12:00pm - 5:00pm
Dr. Jennifer Miller speaks at Baruch’s Zicklin Center for Corporate Integrity
Location
New York, NY
March 3, 2018 4:00-5:30pm
Dr. Jennifer Miller speaks at Columbia University Graduate School of Journalism on the Ethics of Big Data, AI and the Future for FASPE’s annual symposium.
Location
New York, NY
February 7, 2018
Bioethics International will host a webinar on data-sharing in clinical trials, on February 7, 2018. We will introduce our revised data-sharing standards to be added to the Good Pharma Scorecard (GPS). We’ll also review feedback from industry and non industry on our previous draft data-sharing standards.
This webinar is mainly for pharma and biotech companies who will be ranked in the 2018 GPS. If you have not received an invitation and would like to join the discussion, contact us at infoATbioethicsinternational.org
Location
Webinar
January 30, 2018 — January 31, 2018
Dr. Jennifer Miller Presents: “Elevate Organizational and New Drug ‘Good Pharma Scorecard’ Ratings Through Clinical Transparency Best Practices”
Wednesday, January 31, 2018, 11am
Location
Philadelphia, PA
January 22, 2018 2:00-3:45 pm
Location:
Robeco Institutional Asset Management BV – UK Branch
Augustine House, 6a Austin Friars,
London EC2N 2HA,
United Kingdom
Attendees:
9 investment firms with approximately $3 trillion combined assets under management
December 6, 2017 11:30am Talk and 5pm Talk
Dr. Jennifer Miller discusses clinical trial ethics at Augusta University
Wednesday, December 6th
Location
Augusta, GA
November 10, 2017 — November 12, 2017
Dr. Jennifer Miller Speaks, “Augmented Humans: Are Super Humans the New Reality?”
Sunday, November 12th
Location
Dubai, United Arab Emirates
October 24, 2017
Dr. Jennifer Miller speaks on Panel: Cybersecurity’s Accelerating Threat: The Impact of Evolving Technologies
Tuesday, October 24th
Location
New York, NY
October 11, 2017
Location
New York, NY
Participants
Alliance for Aging Research
Cures Within Reach
FDA
Gemini Group
Johnson & Johnson
Kids v Cancer
Michael J. Fox Foundation
National Breast Cancer Coalition
National Hemophilia Foundation
National Multiple Sclerosis Society
Patients for Affordable Drugs
PCORI
Research!America
September 14, 2017 — September 15, 2017
Dr. Jennifer Miller Speaks, “Data-Sharing: Do we measure up?”
Friday, September 15th
Location
Rockville, MD
June 23, 2017
Dr. Jennifer Miller speaks in Workshop on ethics and integrity in drug development
Friday, June 23rd
Location
New Haven, CT
June 21, 2017 — June 22, 2017
Dr. Jennifer Miller Speaks
Thursday, June 22nd
Location
New York, NY
May 4, 2017
Dr. Jennifer Miller Speaks, “Ethics and Trust in the Pharmaceutical Industry”
Thursday, May 4th
Location
New Haven, CT
April 28, 2017
Dr. Jennifer Miller Speaks
Friday, April 28th
Location
Cambridge, MA
April 6, 2017 — April 8, 2017
Dr. Jennifer Miller, Keynote on The Intersecting Worlds of Researchers, Executives and Journalists
Saturday, April 8th
Location
Greencastle, IN
April 3, 2017
Dr. Jennifer Miller Speaks, “Ethics and Trust in the Pharmaceutical Industry”
Monday, April 3rd
Location
New York, NY
March 29, 2017
Dr. Jennifer Miller Speaks, “Clinical Trial Transparency, Data-sharing, and the Good Pharma Scorecard”
Wednesday, March 29th
Location
Princeton, NJ
March 28, 2017
Dr. Jennifer Miller speaks on Cyber Security
Tuesday, March 28th
Location
New York, NY
March 10, 2017
Location
New York, NY
Participants
Abbvie
Amgen
Astra Zeneca
Bayer
BioGen
Bristol-Myers Squibb
Celgene
Gates Foundation
Genentech (Roche Holdings)
GlaxoSmithKline
Helmsley Trust
Johnson & Johnson
Lilly
Merck KGaA
Merck, Sharp and Dohme
Novartis
Pfizer
Sanofi
Syndax
January 18, 2017 — January 19, 2017
Dr. Jennifer Miller Speaks, “Explore Ethics and The Good Pharma Scorecard”
Wednesday, January 18th
Location
Philadelphia, PA
December 8, 2016
Dr. Jennifer Miller Speaks, “Clinical Trial Data Sharing: Status & Benchmarking—Good Pharma Scorecard”
Thursday, December 8th
Location
London, UK
October 31, 2016
Dr. Jennifer Miller Speaks, “Ethics and Trust in Healthcare Innovation”
Monday, October 31st
Location
Stanford, CA
October 6, 2016 — October 7, 2016
Dr. Jennifer Miller speaks in Workshop on Ethical Issues in Marketing Pharmaceuticals in Emerging Health Systems
Friday, October 7th
Location
Newark, NJ
September 28, 2016
Dr. Jennifer Miller speaks in Town Hall Session, “Working Together to Serve Patients”
Wednesday, September 28th
Location
New York, NY
September 20, 2016 — September 21, 2016
Dr. Jennifer Miller speaks, “Ethics Workshop, Caring for Vulnerable Populations: Cognitive Assessment, Ethical Considerations, and Health Policy”
Tuesday, September 20th
Location
New York, NY
August 22, 2016
Dr. Jennifer Miller, Keynote on Ethics and Transparency in Healthcare Innovation
Monday, August 22nd
Location
Philadelphia, PA
August 17, 2016
Location
New York, NY
Participants
IAVI
Encore, A Quintiles Company
Harvard Medical School
AbbVie
Amgen
AstraZeneca
Bayer
Bristol-Myers Squibb
Johnson & Johnson
Novartis
Novo Nordisk
Pfizer
Sanofi
Syndax
Transperfect
May 25, 2016
Dr. Jennifer Miller Speaks, “The Good Pharma Scorecard: Special Focus on Publications”
Wednesday, May 25th
Location
Tarrytown, NY
March 14, 2016
Dr. Jennifer Miller Speaks, “Pharmaceutical Strategy: Ethics and Reputational Hazards”
Monday, March 14th
Location
New York, NY
March 2, 2016
Dr. Jennifer Miller Speaks, “Ethics and Governance of Healthcare Innovation and the Good Pharma Scorecard”
Wednesday, March 2nd
Location
New York, NY
February 17, 2016
Dr. Jennifer Miller Speaks, “Critical Issues in Emergency Medicine Antidotes in Society: Ethics, Capital, Regulation, Scientific Principle, Public Health, and the Public Good”
Wednesday, February 17th
Location
New York, NY
December 10, 2015
Dr. Jennifer Miller presents to the Medical Toxicology Fellows on Clinical trial registration, reporting, publication and FDAAA compliance
Thursday, December 10th
Location
New York, NY
November 4, 2015
Dr. Jennifer Miller Speaks, “Ethics and Trust in Healthcare Innovation: Could Ranking Pharmaceutical Companies and New Drugs on Clinical Trial Transparency Help?”
Wednesday, November 4th
Location
Baltimore, MD
October 6, 2015
Location
Cambridge, MA
Participants
Barclays
Bayer
Bristol Meyers Squibb
GlaxoSmithKline
International Aids Vaccines Initiative
Johnson and Johnson
Marymount International
Merck
Novartis
NYU Langone Medical Center
Pfizer
Quintiles
University of Pennsylvania
Roche
Sanofi
September 9, 2015
Dr. Jennifer Miller Speaks
Wednesday, September 9th
Location
New York, NY
May 1, 2015 — May 2, 2015
Dr. Jennifer Miller Speaks, “Institutional Corruption in Medicine”
Saturday, May 2nd
Location
Cambridge, MA
April 24, 2015 — April 26, 2015
Dr. Jennifer Miller, Keynote on research ethics
Saturday, April 25th
Location
Brooklyn, NY
April 21, 2015
Dr. Jennifer Miller Speaks, “Ethics, Trust, Global Health and the Pharmaceutical Industry”
Tuesday, April 21st
Location
Cambridge, MA
April 17, 2015 — April 18, 2015
Dr. Jennifer Miller Speaks
Friday, April 17th
Location
Binghamton, NY
April 10, 2015
Location
Cambridge, MA
April 7, 2015
Dr. Jennifer Miller Speaks, “Ethics, Trust, Global Health and the Pharmaceutical Industry”
Tuesday, April 7th
Location
Durham, NC
April 1, 2015
Dr. Jennifer Miller Speaks, “Shining light on healthcare innovation”
Wednesday, April 1st
Location
Durham, NC
March 31, 2015
Dr. Jennifer Miller Speaks, “Data sharing in clinical trials”
Tuesday, March 31st
Location
Cambridge, MA
March 27, 2015
Dr. Jennifer Miller speaks on Institutional Corruption in Healthcare
Friday, March 27th
Location
Cambridge, MA
October 14, 2014
Dr. Jennifer Miller Speaks, Lecture on corruption, ethics and governance in biomedical research
Tuesday, October 14th
Location
Durham, NC
October 6, 2014
Dr. Jennifer Miller Speaks, “Adaptive Regulatory Strategies in Healthcare Innovation”
Monday, October 6th
Location
Durham, NC
September 9, 2014
Dr. Jennifer Miller Speaks, “Transparency and Trust in the Pharmaceutical Industry: Could Rating Help?”
Tuesday, September 9th
Location
Cambridge, MA
August 14, 2014
Dr. Jennifer Miller Speaks, “Ethics in the Pharmaceutical Industry: Could Rating Help?”
Thursday, August 14th
Location
New York, NY
June 25, 2014
Location
Cambridge, MA
June 18, 2014 — June 19, 2014
Dr. Jennifer Miller Speaks, Panel Presentation on Ethics and Trust in the Pharmaceutical Industry
Thursday, June 19th
Location
Mexico City, Mexico
April 1, 2014
Dr. Jennifer Miller Speaks, “Truth-telling and the Pharmaceutical Industry”
Tuesday, April 1st
Location
New York, NY
June 3, 2013
Location
Cambridge, MA
October 15, 2010 — October 16, 2010
Dr. Jennifer Miller Speaks, “Is Common Ground Possible?”
Thursday, October 15th
Location
Princeton, NJ
May 6, 2010 — May 10, 2010
Dr. Jennifer Miller Speaks on Panel, Who Should be Responsible for Tomorrow’s Drugs?
Thursday, May 6th
Location
Chicago, IL
May 23, 2008
Dr. Jennifer Miller Speaks, “New Dilemmas in Modern Medicine”
Friday, May 23rd
Location
New York, NY