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DIA Facilitating Access: Patients’ perspectives on a streamlined development approach to treatments for debilitating diseases

June 23, 2019June 27, 2019

Panelists will explore the pros and cons of the pathway from the patient perspective and learn about how regulators and sponsors may help facilitate the development of critically needed treatments.  This discussion will introduce a streamlined approach to early-stage development of therapies to address severely debilitating or life-threatening diseases and consider the potential value of a global regulatory approach.

Location: San Diego, CA

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2019 Brain Health and Performance Summit

June 5, 2019June 7, 2019

Dr. Jennifer E. Miller answers “Whose Data Is It” question.

This 75-minute session will look at the ethical considerations, legal aspects, coaching perspectives and athletic viewpoints related to ownership of sports biometric data. This session will be moderated by Jeremy Abbate from Scientific American.

Location: Columbus, Ohio

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The Forum on Bioethics and Pharma 2019

May 2, 2019 8:30am-2:30pm

In partnership with EY and Scientific American, Bioethics International will hosts its 10th annual Forum on what it means to be a trustworthy, patient-centered & ethical pharma and healthcare innovation company. 

Location: New York, NY

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BOLD Summit on AI in Radiology, NYU Langone Medical Center

April 24, 2019

Dr. Jennifer E Miller speaks to BiOethics, the Law, and Data-sharing:
AI in Radiology at an event co-sponsored by NYU Langone Medical Center and Stanford University.
Artificial intelligence is a paradigm-shifting force across many fields including medical imaging. Radiology is one of the most data-rich medical subspecialties and leading academic and industry groups are already working to leverage this powerful tool to move our field forward. Research and implementation of AI in Radiology move us into unchartered territories, raising new questions with regard to best practices for data handling.
Dr. Jennifer E. Miller will discuss AI in the framework of ethical principles and privacy considerations.
Location: New York, NY

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2019 Health Datapalooza, Panel: A Solutions Approach to Data Privacy and Ethics

March 28, 2019 3:20-3:50 p.m.

This panel will bridge practical, legal and regulatory perspectives to solving privacy and ethics challenges related to broader integration of data sources, recruitment and consent, data ownership and social responsibility.

Moderator: Jodi Daniel, Partner – Crowell & Moring

Location: Washington, D.C.

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SXSW: Preventing the Cambridge Analytica of Health Data

March 8, 2019 5:00-6:00 p.m.

In the future, your medical prognosis may be predicted by data from fitness monitors, genetic testing kits, insurance databases, web searches, or even your cell phone’s GPS. Want to participate in a clinical trial? No need to visit the doctor’s office, just click “I agree,” and you’re enrolled! Taking healthcare digital is exciting — it has the potential to expand beyond the academic medical center and the traditional clinical trial. It can also democratize research by making studies more accessible to underserved and remote communities, making data more diverse and inclusive. But as we freely share our information, and as tech companies edge into the healthcare sphere, what protections are needed for ourselves, and our data?

Jennifer Miller, Yale University School of Medicine
Brooke Grindlinger, The New York Academy of Sciences
Regina James, 2M Research
Jessica Mega, Verily Life Sciences

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