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SXSW: Preventing the Cambridge Analytica of Health Data

March 8, 2019

In the future, your medical prognosis may be predicted by data from fitness monitors, genetic testing kits, insurance databases, web searches, or even your cell phone’s GPS. Want to participate in a clinical trial? No need to visit the doctor’s office, just click “I agree,” and you’re enrolled! Taking healthcare digital is exciting — it has the potential to expand beyond the academic medical center and the traditional clinical trial. It can also democratize research by making studies more accessible to underserved and remote communities, making data more diverse and inclusive. But as we freely share our information, and as tech companies edge into the healthcare sphere, what protections are needed for ourselves, and our data?

Jennifer Miller, Yale University School of Medicine
Brooke Grindlinger, The New York Academy of Sciences
Regina James, 2M Research
Jessica Mega, Verily Life Sciences

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2019 Health Datapalooza, Panel: A Solutions Approach to Data Privacy and Ethics

March 28, 2019 3:20-3:50 p.m.

This panel will bridge practical, legal and regulatory perspectives to solving privacy and ethics challenges related to broader integration of data sources, recruitment and consent, data ownership and social responsibility.

Moderator: Jodi Daniel, Partner – Crowell & Moring

Location: Washington, D.C.

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BOLD Summit on AI in Radiology, NYU Langone Medical Center

April 24, 2019

Dr. Jennifer E Miller speaks to BiOethics, the Law, and Data-sharing:
AI in Radiology at an event co-sponsored by NYU Langone Medical Center and Stanford University.
Artificial intelligence is a paradigm-shifting force across many fields including medical imaging. Radiology is one of the most data-rich medical subspecialties and leading academic and industry groups are already working to leverage this powerful tool to move our field forward. Research and implementation of AI in Radiology move us into unchartered territories, raising new questions with regard to best practices for data handling.
Dr. Jennifer E. Miller will discuss AI in the framework of ethical principles and privacy considerations.
Location: New York, NY

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The Forum on Bioethics and Pharma 2019

May 2, 2019 8:30am-2:30pm

In partnership with EY and Scientific American, Bioethics International will hosts its 10th annual Forum on what it means to be a trustworthy, patient-centered & ethical pharma and healthcare innovation company. 

Location: New York, NY

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2019 Brain Health and Performance Summit

June 5, 2019June 7, 2019

Dr. Jennifer E. Miller answers “Whose Data Is It” question.

This 75-minute session will look at the ethical considerations, legal aspects, coaching perspectives and athletic viewpoints related to ownership of sports biometric data. This session will be moderated by Jeremy Abbate from Scientific American.

Location: Columbus, Ohio

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DIA Facilitating Access: Patients’ perspectives on a streamlined development approach to treatments for debilitating diseases

June 23, 2019June 27, 2019

Panelists will explore the pros and cons of the pathway from the patient perspective and learn about how regulators and sponsors may help facilitate the development of critically needed treatments.  This discussion will introduce a streamlined approach to early-stage development of therapies to address severely debilitating or life-threatening diseases and consider the potential value of a global regulatory approach.

Location: San Diego, CA

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Past Events

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2019 Biomedical Transparency Summit

February 15, 2019 2:10 - 2:55 p.m.

CBMRT hosts an annual summit series, the Biomedical Transparency Summits, in the US and EU. These summits represent a unique opportunity for stakeholders in the research ecosytem to connect, collaborate and update on major aspects of research transparency.
Dr. Jennifer E. Miller speaks about Data Sharing Principles and participates on a Data Sharing Panel, focused on Optimizing Utility
Location: Bethesda, MD

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Yale School of Medicine’s GIM “Research in Progress” Meeting

January 10, 2019 12:00-1:00 p.m.

“Ethics and Trustworthiness in the Pharmaceutical Industry and the Role of the Good Pharma Scorecard”
Dr. Miller will focus her talk on bioethics concerns about the pharmaceutical industry. Specifically, she will discuss clinical trial transparency for new drugs and provide an overview of the role of her Good Pharma Scorecard in addressing key bioethics concerns about drug companies.

Location: New Haven, CT

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World Economic Forum: Annual Meeting of the Global Future Councils

November 11, 2018November 12, 2018

The World Economic Forum is made up of 38 councils, each with 20 experts from academia, government, NGOs and industry.  The Future’s council is just one of the 38 councils.  The two group chairs from each council attend the Davos meeting annually.

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The New York Academy of Sciences: Healthcare in the Era of Big Data: Opportunities and Challenges

October 24, 2018October 25, 2018

The mission of the New York Academy of Sciences is to drive innovative solutions to society’s challenges by advancing scientific research, education and policy. Dr. Jennifer E. Miller, Founder of Bioethics International and Assistant Professor at Yale School of Medicine, will be a keynote speaker, presenting on the ethics of big data in healthcare.

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Milken Institute: Future of Health Summit

October 23, 2018October 24, 2018

The Milken Institute Future of Health Summit convenes thought leaders and decision makers to confront some of the world’s most significant health challenges.
Dr. Jennifer E. Miller, Founder of Bioethics International and Assistant Professor at Yale School of Medicine, will speak on the ethics and patient-centricity of healthcare innovation and the pharmaceutical sector.

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DIA Measuring Impact in Patient-Centered Drug Development Conference

October 2, 2018October 3, 2018

Measuring the impact of patient engagement helps ensure meaningful exchange and outcomes. This session presents a frank and forward looking discussion about the constraints around utilizing patient engagement metrics and new initiatives to advance the field.
Jennifer Miller, PhD, Assistant Professor, Yale School of Medicine
Suzanne Schrandt, PhD, Director, Patient Engagement, Arthritis Foundation
Theresa Mullin, PhD, Associate Director, Strategic Initiatives, CDER FDA

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