Miller, JE and Price, A. Data sharing in clinical trials: keeping score. BMJ. 2019
There are many questions over who should have access to health data and who owns them. These issues are complicated in clinical trials where data are co-produced by participants, researchers, clinicians, funders, and industry. Ninety percent of all data ever produced were produced in the past two years, raising novel ethical questions about the responsibilities of data collectors and the rights of participants. [1] These questions are particularly acute for clinical trial data, which hold life-saving potential and can advance patient and population health…