News | Bioethics International

New Fair Inclusion score rates cancer clinical trial diversity

April 29, 2024

Countries often lack access to medicines & vaccines they help develop

May 27, 2022

WSJ: Covid-19 Vaccine Studies May Suffer as Volunteers Consider Dropping Out

November 30, 2020

Lancet Changes Peer-Review Process Amid Flurry of Covid-19 Research

September 23, 2020

Injecting healthy adults with live coronavirus provides moral dilemma, faster path to vaccine

April 27, 2020

Clinical Trial Data Sharing, What Medical Affairs Teams Need to Know

April 1, 2020

Google está na mira de agência americana após acessar milhões de dados médicos

February 1, 2020

Gaming the system

January 17, 2020

FDA and NIH let clinical trial sponsors keep results secret and break the law

January 13, 2020

HHS to probe whether Google’s ‘Project Nightingale’ followed federal privacy law

November 14, 2019

Good Pharma Scorecard Continues to Boost Clinical Trial Transparency, Analyst Report Shows

November 14, 2019

Has the FDA been approving some drugs without proper evidence?

August 20, 2019

Biotech faces a crisis in credibility fueled by boom-era hubris

August 12, 2019

Some Big Pharmas stepped up their game on data transparency — but which flunked the test?

July 22, 2019

Roche and Novo Nordisk Top Clinical Trial Transparency Survey

July 19, 2019

Score: Data-sharing practices improve after public ranking

July 18, 2019

Newly developed scorecard promotes better clinical trial data sharing

July 11, 2019

Score! ‘Good Pharma’ ranking finds uptick in new drug data sharing and clinical trial transparency

July 10, 2019

Yale-developed scorecard promotes better clinical trial data sharing

July 10, 2019

Bioethics International's Good Pharma Scorecard Improved the Data-Sharing Practices of Large Pharmaceutical Companies

July 10, 2019

Data sharing in clinical trials: keeping score

July 10, 2019

Pharma continues to get poor grades when it comes to sharing clinical trial data

July 10, 2019

Dr. Jennifer Miller co-authors "Why we need a new social contract for data in healthcare" focused on data-sharing and precision medicine

March 21, 2019

Transparency Advocates Win Victory for Public Access to Clinical Trial Data

February 25, 2019

Bioethics International's Jennifer Miller, PhD, and Michelle Mello, JD, comment on Purdue Pharma's connections to hospitals and universities

January 16, 2019

Why Big Tech Wants Access to Your Medical Records - Dr. Miller comments on both the opportunities and the privacy concerns

January 9, 2019

Dr. Miller comments on the ethics of privacy and data ownership in "Who owns your medical data? Most likely not you."

November 25, 2018

Dr. Miller comments on "Genetic Testing and Data Privacy and Ownership"

November 15, 2018

Dr. Miller comments in "New In Vitro Fertilization Technique Aims To Be Liquid Biopsy For Embryos, But Raises Concerns"

November 9, 2018

Half of U.K. Clinical Trials Fail to Publish Data, Report Shows

November 1, 2018

Jennifer Miller, Yale professor & Founder of BEI, re-appointed to World Economic Forum

September 4, 2018

‘Rogue medicine in a bathtub’: Bioethicists Jennifer Miller & Hank Greely on the vice and virtue of pharma hacking

August 13, 2018

Hu-manity.org and Bioethics International Announce New Human Data Ethics Lab to Champion Data Rights

July 31, 2018

Blockchain as pharma’s ‘trust catalyst' webinar w former Chief Digital Officer, Bayer; Chief Data Officer, Sanofi, Jennifer Miller et al

June 27, 2018

BEI participates in EyeforPharma Webinar on ethics of big data & blockchains in healthcare w/ Hu-manity.co, HUGO, Sanofi et al

June 19, 2018

J&J Announces Progress on Health for Humanity Goals, mentions BEI & GPS in report

June 5, 2018

Why sponsors need a global view of clinical trial compliance

May 17, 2018

Health Citizenship: A New Social Contract To Improve The Clinical Trial Process

May 8, 2018

John Arnold: ‘These pricing trends can’t continue without bankrupting … the system’

May 7, 2018

HOW GLOBALIZATION IS IMPROVING CLINICAL TRIAL TRANSPARENCY

May 1, 2018

Is Red Tape Depriving Patients of Life-Altering Therapies?

April 20, 2018

Big Data and Ethics

March 20, 2018

New FDA transparency push begins with J&J's Erleada

March 20, 2018

Can Bitcoin technology improve research data integrity? This Clemson professor thinks so.

March 16, 2018

Volunteers Expect Information About Trial Results, but Sponsors and Sites Struggle with the Best Way to Share it

March 1, 2018

Expanded Patient Access: Balancing Risk and Reward

March 1, 2018

F.D.A. Chief Goes Against the Administration Stereotype

February 12, 2018

Big Data Probably Knows More About You Than Your Friends Do

February 5, 2018

Dr. Miller Talks "Radical Transparency" with WWD

January 26, 2018

Dr. Jennifer Miller interviewed on "The Dr. Oz Show"

January 12, 2018

Faced with public pressure, research institutions step up reporting of clinical trial results

January 9, 2018

Good Pharma Scorecard Ranks Companies on Clinical Trial Transparency

January 3, 2018

What makes a ‘good’ pharma company? J&J, Sanofi lead clinical trial transparency

December 19, 2017

Good Pharma Scorecard results show continued drive for transparency

December 18, 2017

Pharma Ups Its Game On Trial Transparency But There's 'Room For Improvement'

December 14, 2017

J&J, Sanofi Top Bioethics International Transparency Report

December 13, 2017

Which pharma companies are the most transparent with clinical trial data?

December 9, 2017

J&J and Sanofi lead ranking of clinical trial transparency

December 8, 2017

Bio Roundup: BIG DATA

December 8, 2017

5 Questions: Michelle Mello on ranking clinical trial reporting of pharmaceutical companies

December 7, 2017

Is your medication safe and effective?

December 7, 2017

Medical ethics expert discusses concerns about transparency of clinical trials

December 6, 2017

Johnson & Johnson, Sanofi top 'Good Pharma' trial transparency ranking with perfect scores

December 6, 2017

Clinical Trials Reporting for Pharma-Sponsored Trials Shows Improvement

December 5, 2017

J&J, Sanofi ranked best for clinical trial transparency

December 5, 2017

J&J, SANOFI TOP LIST FOR CLINICAL TRIAL TRANSPARENCY

December 5, 2017

Bioethics International Releases the "Good Pharma Scorecard" in BMJ Open, Ranking the Top 20 Largest Pharmaceutical Companies on Clinical Trial Transparency

December 5, 2017

Interview with Dr. Jennifer Miller

December 5, 2017

Clinical trial transparency improves at (some) biopharmas as J&J, Sanofi lead a pack trailed by Valeant and Allergan

December 5, 2017

Sanofi and J&J Lead the Way With Clinical Trial Transparency, Study Finds

December 5, 2017

Some drug makers are doing a better job of disclosing clinical trial data

December 5, 2017

Many Drug Trials Still Shrouded in Secrecy, Study Finds

December 5, 2017

Johnson & Johnson, Sanofi Top the 2017 Good Pharma Scorecard

December 5, 2017

Video: PharmExec Talks Pharma Reputation with Jennifer Miller of Bioethics International

November 1, 2017

Does It Really Matter if the Pharma Industry Is or Is Not Trustworthy? With Dr. Jennifer Miller, Founder of Bioethics International and Creator of Good Pharma Scorecard

August 17, 2017

A Surprising Amount of Medical Research Isn’t Made Public. That’s Dangerous.

August 1, 2017

Drug Makers Fund More Compassionate Use Programs Than You May Think

July 31, 2017

76% of Experimental Medicines Provided to Very Ill Patients in Expanded Access Programs Receive FDA Marketing Approval, New Study Finds

July 31, 2017

NGO Perspective On Open Trial Access: What You Measure, Gets Done

May 10, 2017

‘It will help us with our product’: Emails show how a billionaire’s philanthropy boosted his business

April 14, 2017

Report cards could be just what pharma needs to get back to respectability

February 1, 2017

Improving FDA Evaluations Without Jeopardizing Safety and Efficacy

February 1, 2017

Storm Warning: The Trial Disclosure Forecast for 2017

January 5, 2017

Tracker flags up failures to report clinical trials

November 3, 2016

Good Pharma Scorecard: Pharma's Worst Fear or Newest Ally?

September 26, 2016

Faster registration, more transparency punctuate new HHS clinical trial final rule

September 22, 2016

Why Big Pharma Gets A Failing Grade On Clinical Trial Transparency

August 17, 2016

Strengthening Research through Data Sharing

August 4, 2016

How much do we know about the clinical trials behind drugs approved by the FDA?

August 1, 2016

In clinical trials, for-profit review boards are taking over for hospitals. Should they?

July 6, 2016

Creating benchmarks for ethical pharma, interview with Bioethics International’s Jennifer Miller

June 29, 2016

Biden threatens funding cuts for researchers who fail to report clinical trial results

June 29, 2016

BIO Still Delivers

June 22, 2016

Good Luck With That One: A Funder's Latest Challenge to Big Pharma

June 2, 2016

Grants Roundup: Foundation Awards Boost News Outlets and Search for the Universe’s Origins

May 18, 2016

Laura and John Arnold Foundation announces $3.6 million grant to increase clinical trial transparency for FDA approved drugs and interventions

May 17, 2016

Pharmalot, Pharmalittle: Walmart and McKesson team up to buy generic drugs

May 17, 2016

Governments need to tighten regulation if the sharing of clinical-trial data is to succeed.

May 17, 2016

Drug companies are sharing their data — but few are looking

March 29, 2016

Undisclosed Clinical Trial Results Across All Major Academic Medical Centers: “A Failed Moral Obligation”

February 17, 2016

Bioethics International's Good Pharma Scorecard Publication Selected as BMJ Open Editors' Pick for 2015

February 11, 2016

Biosimilars in Development Near End of Phase 3 Trials

February 1, 2016

French debacle renews concern about clinical trial secrecy

January 20, 2016

Podcast: Jennifer Miller, PhD & the Good Pharma Scorecard

December 21, 2015

A Scorecard to Improve Drugmakers' Transparency

November 25, 2015

Transparency in Clinical Trials: Why The Industry Isn’t Measuring Up

November 25, 2015

Drug companies flunk transparency test

November 21, 2015

Some Pharma Companies Have Fallen “Below Legal and Ethical Standards” On Clinical Trial Transparency

November 17, 2015

Clinical Trial Data Underreported: Study

November 16, 2015

Keeping Score, Clinical Watchdogs Push Drugmakers For More Open Data

November 16, 2015

Spotlight On: Transparency scorecard offers Big Pharma much-needed chance to mend image

November 15, 2015

Clinical Trial Data Sharing: Central Public-Private Portal May Expand Access

November 13, 2015

Pharmaceutical Scorecard Shames Giants Over Research Cover-ups

November 13, 2015

Study finds big pharma inconsistent with disclosure of clinical trial data

November 12, 2015

Gilead, Sanofi would tank in Bioethics International’s new Good Pharma Scorecard

November 12, 2015

Five things for pharma marketers to know

November 12, 2015

Drugmakers Kept One-Third of Trial Results Secret, Study Finds

November 12, 2015

Study finds big pharma skirts laws, ethical standards in keeping trial data secret

November 12, 2015

How pharma keeps a trove of drug trials out of public view

November 12, 2015

Big pharma inconsistent with disclosure of information on clinical trials, new study finds

November 12, 2015

BMJ Publishes 'Transparency Scorecard'

November 12, 2015

Drug makers need to disclose more clinical trial data, study says

November 12, 2015

Biopharmas (mostly) meet mandatory trial reporting but fall flat voluntarily

November 12, 2015

Drug firms far from transparent with trial data watchdog group finds

November 12, 2015

New report shows evidence of poor clinical trial data disclosure in FDA applications

November 12, 2015

Gilead, Sanofi singled out as worst offenders in failing to disclose trial data

November 12, 2015

Lost in translation: Restoring Trust, Mission and Ethics in the Pharma Industry

July 3, 2015

Will New Rules to Toughen Reporting of Trial Results Make a Difference?

December 5, 2014

Push For Data Disclosure

November 21, 2014

US government cracks down on clinical-trials reporting

November 19, 2014

New ethics fellow to research transparency in health care

September 29, 2014

The data behind approved drugs

August 31, 2014

Ice Bucket Challenge nets millions for ALS charity

August 18, 2014

Bioethicist’s Work Bridges Science, Law, and Religion

June 5, 2009

News & Events News

New Fair Inclusion score rates cancer clinical trial diversity

Countries often lack access to medicines & vaccines they help develop

WSJ: Covid-19 Vaccine Studies May Suffer as Volunteers Consider Dropping Out

Lancet Changes Peer-Review Process Amid Flurry of Covid-19 Research

Injecting healthy adults with live coronavirus provides moral dilemma, faster path to vaccine

Clinical Trial Data Sharing, What Medical Affairs Teams Need to Know

Google está na mira de agência americana após acessar milhões de dados médicos

Gaming the system

FDA and NIH let clinical trial sponsors keep results secret and break the law

More trial results are being posted to public database, but data quality is lacking, report finds

HHS to probe whether Google’s ‘Project Nightingale’ followed federal privacy law

Good Pharma Scorecard Continues to Boost Clinical Trial Transparency, Analyst Report Shows

Has the FDA been approving some drugs without proper evidence?

Biotech faces a crisis in credibility fueled by boom-era hubris

Some Big Pharmas stepped up their game on data transparency — but which flunked the test?

Roche and Novo Nordisk Top Clinical Trial Transparency Survey

Score: Data-sharing practices improve after public ranking

Newly developed scorecard promotes better clinical trial data sharing

Score! ‘Good Pharma’ ranking finds uptick in new drug data sharing and clinical trial transparency

Yale-developed scorecard promotes better clinical trial data sharing

Bioethics International's Good Pharma Scorecard Improved the Data-Sharing Practices of Large Pharmaceutical Companies

Data sharing in clinical trials: keeping score

Pharma continues to get poor grades when it comes to sharing clinical trial data

Dr. Jennifer Miller co-authors "Why we need a new social contract for data in healthcare" focused on data-sharing and precision medicine

Transparency Advocates Win Victory for Public Access to Clinical Trial Data

Bioethics International's Jennifer Miller, PhD, and Michelle Mello, JD, comment on Purdue Pharma's connections to hospitals and universities

Why Big Tech Wants Access to Your Medical Records - Dr. Miller comments on both the opportunities and the privacy concerns

Dr. Miller comments on the ethics of privacy and data ownership in "Who owns your medical data? Most likely not you."

Dr. Miller comments on "Genetic Testing and Data Privacy and Ownership"

Dr. Miller comments in "New In Vitro Fertilization Technique Aims To Be Liquid Biopsy For Embryos, But Raises Concerns"

Half of U.K. Clinical Trials Fail to Publish Data, Report Shows

Jennifer Miller, Yale professor & Founder of BEI, re-appointed to World Economic Forum

‘Rogue medicine in a bathtub’: Bioethicists Jennifer Miller & Hank Greely on the vice and virtue of pharma hacking

Hu-manity.org and Bioethics International Announce New Human Data Ethics Lab to Champion Data Rights

Blockchain as pharma’s ‘trust catalyst' webinar w former Chief Digital Officer, Bayer; Chief Data Officer, Sanofi, Jennifer Miller et al

BEI participates in EyeforPharma Webinar on ethics of big data & blockchains in healthcare w/ Hu-manity.co, HUGO, Sanofi et al

J&J Announces Progress on Health for Humanity Goals, mentions BEI & GPS in report

Why sponsors need a global view of clinical trial compliance

Health Citizenship: A New Social Contract To Improve The Clinical Trial Process

John Arnold: ‘These pricing trends can’t continue without bankrupting … the system’

HOW GLOBALIZATION IS IMPROVING CLINICAL TRIAL TRANSPARENCY

Is Red Tape Depriving Patients of Life-Altering Therapies?

Big Data and Ethics

New FDA transparency push begins with J&J's Erleada

Can Bitcoin technology improve research data integrity? This Clemson professor thinks so.

Volunteers Expect Information About Trial Results, but Sponsors and Sites Struggle with the Best Way to Share it

Expanded Patient Access: Balancing Risk and Reward

F.D.A. Chief Goes Against the Administration Stereotype

Big Data Probably Knows More About You Than Your Friends Do

Dr. Miller Talks "Radical Transparency" with WWD

Dr. Jennifer Miller interviewed on "The Dr. Oz Show"

Faced with public pressure, research institutions step up reporting of clinical trial results

Good Pharma Scorecard Ranks Companies on Clinical Trial Transparency

What makes a ‘good’ pharma company? J&J, Sanofi lead clinical trial transparency

Good Pharma Scorecard results show continued drive for transparency

Pharma Ups Its Game On Trial Transparency But There's 'Room For Improvement'

J&J, Sanofi Top Bioethics International Transparency Report

Which pharma companies are the most transparent with clinical trial data?

J&J and Sanofi lead ranking of clinical trial transparency

Bio Roundup: BIG DATA

5 Questions: Michelle Mello on ranking clinical trial reporting of pharmaceutical companies

Is your medication safe and effective?

Medical ethics expert discusses concerns about transparency of clinical trials

Johnson & Johnson, Sanofi top 'Good Pharma' trial transparency ranking with perfect scores

Clinical Trials Reporting for Pharma-Sponsored Trials Shows Improvement

J&J, Sanofi ranked best for clinical trial transparency

J&J, SANOFI TOP LIST FOR CLINICAL TRIAL TRANSPARENCY

Bioethics International Releases the "Good Pharma Scorecard" in BMJ Open, Ranking the Top 20 Largest Pharmaceutical Companies on Clinical Trial Transparency

Interview with Dr. Jennifer Miller

Clinical trial transparency improves at (some) biopharmas as J&J, Sanofi lead a pack trailed by Valeant and Allergan

Sanofi and J&J Lead the Way With Clinical Trial Transparency, Study Finds

Some drug makers are doing a better job of disclosing clinical trial data

Many Drug Trials Still Shrouded in Secrecy, Study Finds

Johnson & Johnson, Sanofi Top the 2017 Good Pharma Scorecard

Video: PharmExec Talks Pharma Reputation with Jennifer Miller of Bioethics International

Does It Really Matter if the Pharma Industry Is or Is Not Trustworthy? With Dr. Jennifer Miller, Founder of Bioethics International and Creator of Good Pharma Scorecard

A Surprising Amount of Medical Research Isn’t Made Public. That’s Dangerous.

Drug Makers Fund More Compassionate Use Programs Than You May Think

76% of Experimental Medicines Provided to Very Ill Patients in Expanded Access Programs Receive FDA Marketing Approval, New Study Finds

Study finds big pharma skirts laws, ethical standards in keeping trial data secret